Hello!
Well I thought I would share with you all my appt with my rheumy last
tuesday (sorry I've been behind) Let me first recap what happened at my last
visit before this one. That visit was 2 years ago, and at the time, she
kept trying to tell me my pain was fibro related and not PA and to deal with
it. I of course had a problem with this and kept arguing with her to do
something, anything. So she sets me up with a pain doc.....(didnt go due to
change in insurance), that was my first issue. The idiot who was doing the
remecaid infusions was a pain my bootie! she was an older RN and would see
me coming and tell me i'm not doing your iv. Uhm look lady, you're all
that's here, yes you are. I am used to being a human pincushion and had no
issues with multiple sticks. I may have tears running down my face, but I
never scream or wince, or even move, I told them keep going until I cant
take it any longer. Well she didnt like that at all.... and I spoke to the
rheumy at that time about her behavior. I have sucky almost non-existant
veins and that stupid nurse didnt help a thing. My third and final issue
was I was working in a doctor's office at the time, and my office manager
happened to be all cozey comfy with the rheumy's office manager and decided
to discuss my health issues, my treatments and my ability to work etc. and
questioned my time off. I was FURIOUS!! With all the hippa laws etc they
have the gall to discuss my health behind my back. I went in there and told
the rheumy what was going on and i wanted it stopped immediately. I knew
for a fact it was going on because only things that were discussed at the
rheumy's, nothing i had shared with my office manager was getting back to
me. So let's just say I was a little, ok alot hissy at the time. I was
done and walked away. I said ya know what, I"ll take raptiva for my skin
and forget the rest...
Ok, BIG mistake..... now two years later, I go back right. OMGDS she was
E-V-I-L to me!!! she walked out of the room and i looked at my hubby and
said "i think i p@ssed her off the last time I was here" and my hubby says
"ya think?????, UHM YES" She was all ready to be nasty and I showed her my
feet and my hands and she stopped short of saying what she was going to say
to me because she could see things have gone way south. She took a chest
xray and did the tb test... she took xrays of my hands, and my knees (not my
feet which i felt was odd cuz they are disfigured) did the baseline
bloodwork, and then also gave me two shots of depo medrol to get me
moving.... I had waddled in there using my walker and was really not doing
well at all. She just gives me this attitude and "well it wont work as well
without methotrexate you do realize that?" (i can't take it due to liver
disease) I'm like uhm, yeah I understand that fully, and dont you think I
should at least try, it may not cure what ails me now, but stop it from
becoming any more deteriorated than I already am!!!! So its been a week
now, and I'm still waiting to hear if the ins approved the remecaid. They
said it could take 2-3 weeks because everyone is going thru re-certs right
now and new apps as well so they are backlogged. Whatever, just let me
know. I am praying, and please those of you that believe in a higher power,
pray that my veins can handle the iv's this time around. I am drinking alot
more water these days, so maybe, just maybe.... they got me on the first
stick for my bloodwork this last time around which is amazing.... so maybe
this time it wont be as hard. They also have a gem on wed's giving the
iv's... she's like a big wig at a labour and delivery at a major hospital
here in our area, suffice it to say, she is good!!!!
SOOOOO.... with that said, I'm still on pain pills, tons of advil, no more
anti-depressants, and awaiting my remecaid approval..... THought I'd share
=))))
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I can do all things through Christ which strengtheneth me Phil 4:13